Volunteers needed to help with melanoma research proposal

Last year, we told you about the Tier 1 Pipeline to Proposals award we received from the Patient-Centered Outcomes Research Institute, which played an integral role in the creation of the new Melanoma Community Registry at Oregon Health & Science University. Our project recently came to an end, and we're working on a proposal for Tier 2 funding that's due on Jan. 30. We're hoping to enlist a few new volunteers to help develop the proposal and, if funded, implement our work plan.

Between now and Jan. 30, your contribution would include reading our Tier 1 proposal and past progress reports as well as reviewing Tier 2 proposal instructions and provided feedback on initial drafts of Tier 2 work plan. Most of this work can be done virtually, but may include one in-person meeting.

The project itself would be funded from March 2015 to March 2016. Potential volunteer roles include outreach to other patients, non-profit organizations, and other stakeholders; participating in a training on research methods; regular in-person meetings; and other activities determined by the proposal.

This will be a challenging but incredibly rewarding opportunity for anyone who is interested in making an impact on the state of early detection research for melanoma. If you're interested, please contact Katie Wilkes at info@solsurvivorsusa.org and we'll send more information in early January.

You're invited: SolSurvivors Oregon Kick-off Meeting, Sept. 16

SolSurvivors is a growing network of patients, family members, and advocates who are passionate about melanoma prevention and early detection. Join us for our first meeting in Oregon!

SolSurvivors Oregon Kick-Off Meeting
Tuesday, Sept. 16, 2014 at 6 p.m.
OHSU Center for Health and Healing, 16th Floor Library 
3303 S.W. Bond Ave. Portland, OR 97239 

Please RSVP by Sept. 10.

On the agenda for our first meeting:

• Learn how you can join a new advisory committee to provide critical insight on the new OHSU Melanoma Community Registry 
• Discuss future plans for melanoma outreach events in Oregon and Washington, such as the AIM Melanoma Walk, patient symposiums, etc. 
• Meet other volunteers who hate melanoma and are trying to do something about it!